Wednesday, October 29, 2008

Brief Chronicles of my walk with 'NHL'

Brief 'Introduction'

May 2003 - Biopsy and diagnosed with Non Hodgkin Lymphoma, my experience with MY first Bone marrow Aspiration and my FIRST chemotherapy (CHOP).

Oct 2003 - Added another 2 extra session.

Nov 2003 - First round of Chemotherapy (CHOP) ENDED.

Jan 2004 - Tumour grown back to 6x3cm. Not responding to CHOP treatment proceeding to ICE. But amid all these I PASS MY driving Practical on my FIRST TRY!!!

Feb 2004 - 2ND ICE done in hospital. My bone marrow was harvested to standby AND the same month, ICE fail. Tumour was agressive and grown in new site and grown bigger in size 7x5cm.

Mar 2004 - Blood test was done to match with my bro's bone marrow and Yippee we are a match and I checked into the hospital to get ready for stem cell transplant by DROWING my body with all different kind of chemo drugs *MOUTH TAKEN*

Apr 2004 - Stem cell transplant done successfully, put on 7kg in the hospital and recuperation process start ...

Dec 2004 - Went back to work FINALLY!

May 2005 - CT scan done and it came back agressive.
There is a further increase in the anterior mediastinal mass as compared to previous CT. It now measures 61 x 48 mm in maximum diameter


My first Petscan and being referred to Radiotherapy Dept meeting my favourite Doc Michael back and I totally heart how he tell me

"AT THIS STAGE we are still FIGHTING FOR A CURE!"

Jun 2005 - Started the RT session and ended smoothly without any hiccups or side symptons.

2006 to 2007 - After these are all check-ups (initially was quarterly), and as usual there are the blood test, CT Scans and all these caused the anxiety, break downs depressions, FAKES scares, wasted tears (ALOT OF CRYING). It was a really ROLLER coaster that caused alot of emotion and pychological scarring!!

Now I am at a once a year checkup stage, BUT the PENT-up stress for once a year is even WORST! But can't complain much ...

Jul 2008 - Found a spot of 1.3x1.2cm behind my nose from a CT SCAN, suffered through 2 weeks to know that it was Reactive Lymphoid tissue and most people have that and it is more worrisome for me because of my history! DANG!!

Waiting for my next scan in Jun 2009 ...

More to come ... (pictures and more write up with my experience)

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